Families with disable person who are in need of care, face too many problems in their daily lives. Some of these problems may be systemic problems and some of them are psycho-social problems. It is a difficult process to accept that having a disabled person in need of care. And to tackle with the difficulties it has caused is making the situation even more hard. Unfortunately, it is not easy to overcome with these problems for families, who are unrecognized by society and somehow ignored, without getting support. The inward and outward experiences of these families who are exposed to social exclusion are mixed each other. Because, these families were turned into individuals who do not receive social support, who are constantly blamed and accused, who have difficulty in controlling their behaviors related to disability of they have the disabled people, and definetely who are under constant stress anxiety. They always need to talk to someone and regular counseling about their problems. Their private lives have lost their balance. In fact, family caregivers have almost become unable to allocate personal time to themselves. The topic in here is that what the special needs of the family members who are play a role in as caregiver can be and how we can help to them professionally for answering these needs. In order that professionals who is working in social and health fields should use, it is necessary to carry out qualified studies addressing the needs of these families. PARTNERS: 1. Turkey, Istanbul Health Directorate (Coordinator) 2. Bulgaria, “Values, Vırtues, Integrıty” Foundatıon (VVIF) 3. Slovenia, Ozara d.o.o. 4. Spain, FAMS COCEMFE 5. Italy Consorzio SGS 6. Denmark, EQuiP AIMS: • to uplift to a better level emotionally the families with disabled person, • to cause that these families feel better psychologically, • to ensure that they are more involved in social life, • to regulate the balance of their private life’s. TARGETS: • to determine the dificulties and needs of families who have a disabled person and to define the relationship between socio-demographic and psychological factors and their experiences • to contribute to the improvement of the pedagogical knowledge and skills of professionals who are working in the social and health field • to implement pilot studies for the integration of the coaching technique instead of the consulting technique • to organize ateliers/workshops for the professionals and family caregivers • to develop materials that will contribute to the adult education of family caregivers • to bridge sustainable communication between professionals and family caregivers • To fight against marginalization and social exclusion of family caregivers • to contrubute to the development of European values such as social inclusion, diversity and tolerance • to create synergy among stakeholders at European and local level through strategic partnership OUTPUTS: 01. to design a matrix on social and cultural representations of social inclusing for family carers (survey will be conducted in each partner’s city) 02. to create curriculum of training courses on coaching approach 03. to develop supporting tools for families (guideline and leaflet) 04. to develop instructions for professionals 05. to develop a catalog which including service providers for beneficiaries 06. to create videos and interviews related to ateliers/workshops 07. to create a multilingual MOOC -Massive Open Online Course ACTIVITIES: • It will be organized 5 international meeting • It will be organized 5 distant online meeting • It will be organized 2 international training course • It will be organized 5 local multiplier events • It will be organized the dissemination events as local • It will be organized one international search
Families with a disabled person who is in need of care, face too many problems in their daily lives. Some of these problems may be systemic problems and some of them are psycho-social problems. It is a difficult process to accept that having a disabled person in need of care. And to tackle the difficulties it has caused is making the situation even harder. Unfortunately, it is not easy to overcome these problems for families, who are unrecognized by society and somehow ignored, without getting support. The inward and outward experiences of these families who are exposed to social exclusion are mixed with each other. Because, these families were turned into individuals who do not receive social support, who are constantly blamed and accused, who have difficulty in controlling their behaviours related to the disability of they have the disabled people, and definitely who are under constant stress anxiety. They always need to talk to someone and regular counselling about their problems. Their private lives have lost their balance. In fact, family caregivers have almost become unable to allocate personal time to themselves. The topic here is that what the special needs of the family members who are playing a role as caregivers can be and how we can help them professionally for answering these needs. In order that professionals who are working in social and health fields should use, it is necessary to carry out qualified studies addressing the needs of these families. PARTNERS: 1. Turkey, Istanbul Health Directorate (Coordinator) 2. Bulgaria, “Values, Vırtues, Integrıty” Foundatıon (VVIF) 3. Slovenia, Ozara d.o.o. 4. Spain, FAMS COCEMFE 5. Italy Consorzio SGS 6. Denmark, EQuiP AIMS: Our project, which was originally planned for social inclusion, tried to identify the current situation in 6 different European countries and developed a curriculum, solution suggestions and educational videos. In our outputs, we focused on family caregivers and professional caregivers problems both in their private life and in their social life and investigated caregivers rights and regulations regarding them in 6 partners countries and prepared detailed informative and conclusion documents. Thanks to all this content published on our MOOC website as it is aimed to solve the needs of caregiver family members and health professionals and to increase their happiness levels we are able to reach the caregivers and their families and of course law-makers all around the world as the documents includes information about laws and serious statistics (regarding the caregiver's rights and their regulations). TARGETS: Our project identified the need for caregivers and healthcare professionals in 6 European countries (O1). It has created a training curriculum and workshop documents for health professionals(O2). Our project has also produced documents with access in 6 languages, showing the status and opportunities of 6 European countries for Health professionals (O3) and Disabled individuals/Caregivers (O4). Interviews and event videos were shot at the planned events(O6). And finally, the MOOC website, which includes 50+ educational videos, all documents, guest interviews for the identified needs, has been opened to access(O7). From the detection to finding solutions our project is a very strong one in its field. OUTPUTS: The outputs planned within the scope of our project were completed with the contributions of our partner institutions and our local project team. Within the scope of intellectual outputs, 5 of the 7 targeted outputs were funded. All of these outputs were planned and completed, except for the O5 output. Although the O1 output was not funded, it was published by our team as a scientific publication and congress paper. In addition, our project guided its other outputs. O2 - O3 - O4 outputs were completed by all partners. O6 output is complete except for Denmark and Italy partners. The O7 MOOC website, the biggest output of our project, was completed with the contribution of all partners. You can reach the website of our project at mooc.saglikarge.istanbul website. Within the scope of our project, 6 workshop activities were planned. Except for the Italian partner, all partners held the events. The number of participants was changed according to the pandemic rules of the countries. As the Turkey team, we organized an event with more participation than planned in order to achieve the targeted total number. You can access the details in the budget section of the final report and the event records on our project website. (mooc.saglikarge.istanbul) ACTIVITIES: • 6 international TPM meetings, • 2 international training courses, • 5 local multiplier events, • The dissemination events as local, • One international scientific research was organized and published.